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Monday, February 18, 2013

Not to be Morbid: Now

(Image from Facebook - not sure who to credit.
If you know, please tell me. Thanks.)


Now. Today. Tomorrow is something that doesn't really exist, even though we do a good job of pretending that it does. Not meaning to be morbid. But life has a way of putting everything upside down and inside out in a heartbeat. And when that happens, you may never have a chance to do that thing you always wanted to do. Inspirational words sound good, but mean nothing without actual actions. Seriously. Do what you wanted to do. Find a way. NOW.

Vlog Update

I Love You (Video)

There is an app called Vine that allows you to make
very short videos. For the fun of it I made this one
day. For the heck of it, I added the music.

"It's Not My Problem"

Love thy neighbor?
A friend of mine is having some issues in regard to his property. Given the way things are set up, if he fixes his problem in isolation, he will pass the problem on to one, or more of his neighbors.

Given that he is so conscientious, he has decided to reach out to his neighbors and see if there is a way to fix it collectively. He went to a neighbor's house to inquire as to whether or not he could have their cooperation.

The response of the person he spoke with when my friend explained the issue of the potentially moving problem?

"Well it's their problem, then."

What if the "problem" of the world we live in is a
problem of identification? What if we have issues as
a culture because no one wants to claim a problem
as their own until they are faced with it?

The "funny" thing about this, I think, is that in isolation
there are likely few problems. But then - when a
problem hits - it is not only my problem to be dealt
with personally, but then it should be something
everyone else looks at, and should deal with on some
level, too.

I would imagine most laws come from that place.
A person had a problem, and got others to see his
problem in a way that demanded laws and legislation.
Those who spoke the loudest and longest are the ones
who probably won this "prize."

When it comes to things like this, I am guilty. I never
really noticed or cared about things labelled "cancer"
before my diagnosis. But once I came into this world
of cancer, my eyes have been opened to a whole new
world.

Could I have seen it before?

I am guessing yes.

But the thing was, I wasn't apparently willing or able,
because it wasn't until it became my problem that I
really took note. And then, because it was an issue
for me, I became vocal, and therefore those around me
could choose to tune out ("it's not my problem") and
move on or in some way engage.

When we care about our neighbor, we can ultimately
care about ourselves. We never know when something
we do for another may come back and be helpful to us.

A friend of mine - before he was a friend - sought my
help with something. I was more than happy to help,
but he said he that felt he should help me. I kept
refocusing things as I didn't expect anything for the help
I was offering.

I could have potentially have met him and his "problem"
and kept going. After all, his issue wasn't my issue.
But I didn't.

Well...

He was persistent, and it turns out that he helped me
not with just one thing, or two, but with a whole lot
of things, and not only that, I have been living in his
house for the last two years.

While you may be someone who has no family history
of cancer, while you may be someone who has no
neighborhood issues to resolve, while you may be
someone who has a job, a family, and food on the
table, friends to share life with, while you may have
many good pieces and parts to life, there could come
a time things could change, and change drastically, and
if that was to ever happen, wouldn't it be good to know
that someone, somewhere thought enough of the stranger
that was you to put something in place to help you fix
your problem? Wouldn't it be good to know that those
around you would be willing to help you, even though
they didn't have to because it's not their problem?

I don't know where the "lines" are drawn, or should
be drawn, or if they should even be drawn, but what I
do know is that it is very likely we could take more
note and do more than we do. We could open our
hearts and minds wider than we do. We could realize
that sometimes looking after another means looking out
for ourself.

And we could realize that while we may think something
that is a problem for another is not personal, if we are
exposed to it, it might be to our benefit to treat it as 
though it is.



Please Read, Act on This & Share! (Time Sensitive)


Cindy Carter of The Cancer Support Foundation is working
diligently on getting legislation passed for the State of Maryland
that will support those who are affected by cancer.

If you are in the state of Maryland, please consider supporting
the effort by making calls and passing the info along. You
never know if there may come a day that you or someone
you know will need what Cindy is working for.

Even if you don't know anyone in Maryland, you can still pass
this info along. You never know who knows somebody who
knows somebody who knows somebody who could help or
potentially benefit.

In addition, the work that happens here could also move to
other states, as well.  I suspect something like what Cindy is
working on is needed in most states. I don't know for certain,
but you can certainly check it out for yourself if you live
elsewhere.

I started calling the numbers myself. And it is a bit awkward -
at least at first. But after the first couple I got the hang of it.

Just tell the person who answers that you would like for the
Delegate to support the bill noted below. They may ask if
you live in the district (one did so far), but you can explain
that you were told that it didn't matter whether you did it or
not. A few have asked just for a name.

From the reaction I have received so far, I have to wonder
how many, if any, have acted on this request.

I know it takes time and energy. And I know you probably
have other things to do, but if you could at least call a few
on the list - or even just the one(s) in your area, it is better
than none.

Thanks for your support in helping our those who are 
affected by cancer, and may it never be you who needs the
help.

Here is her post/Request for A Call to Action:

Call to Action!!! March 5 is the hearing date for the Task Force on Temporary disability Insurance that would help cancer families if they have to leave or get fired from their job. I have been soooooo pleased at the positive expression from the Delegates and Senators that I have met with.

We do need to call and let the delegates on the committee that will hear this issue (House and Economic Matters) know that you the people out there want to see this issue studied in a task force. Call as many as you can with a very simple line. This bill actually states this help for "individual in Maryland who becomes disabled due to nonwork-related illness or injury."

Say "Please support HB 955 Temporary Disability Insurance Task Force Bill. Families are being devastated when they lose their jobs due to an accident or illness."

They may take your name and phone number.

Share with your friends. You can call everyone even if they are not your Delegate!!

House Economic Committee HB 955 Temporary Disability Insurance Task Force Bill

Delegate Davis 410-841-3519 - Chair District 25 (@houghdelegate)
Delegate Rudolph 410-841-3444 – V Chair District 34
Delegate Barkley – 410-841-3001 District 39
Delegate Barnes – 410-841-3046 District 21
Delegate Braveboy – 410-841-3707 District 25
Delegate Burns – 410-841-3352 District 10
Delegate Feldman – 410-841-3186 District 15
Delegate Haddaway-Riccio – 410-841-3429 District 37
Delegate Hershey 410-841-3543 District 36
Delegate Hucker 410-841-3474 District 20
Delegate Impalaria -410-841-3289 District 7
Delegate Kramer 410-841-3485 District 19
Delegate Love 410-841-3511 District 32
Delegate McHale 410-841-3319 District 46
Delegate W E Miller 410-841-3582 District 9
Delegate Minnick – 410-841-3332 District 6
Delegate Olszewski 410-841-3458 District 6
Delegate Schuh 410-841-3206 District 31
Delegate Schulz 410-841-3080 District 4
Delegate Stifler 410-841-3278 District 35
Delegate Vaughn 410-841-3691 District 24

If you use Twitter, please Tweet and use Hashtag #MDHB955.

Sunday, February 17, 2013

An Example of Chemo Brain (Video)

I just saw this example of what a woman experienced as a result of chemo brain.

You might be surprised at what she says...be sure to listen til the end.

If you can't see the video below, you can view it here.

Chemo Tired

I was reading a blog from someone named Ann
who is dealing with Stage IV breast cancer. She
said something that I wanted to share as I often
have felt that people have not realized how tired
I was when getting chemo. Maybe what she said
will give some added perspective:

"Cancer makes you tired. Chemo makes you tired. Together they make a tiredness bomb, only one too tired to go off, so it just sort of lays there, fizzling. Some chemos make you more tired than others. Cancer tiredness is not like healthy people tiredness. There is no sleep I can get, no nap I can take, no rest I can do that will refresh me. I am deeply exhausted, all the time. I wake up in the morning (noon), make my espresso coffee, and immediately need to sleep for several more hours."

You can also see Ann on Facebook.

There are times I still get really knocked out tired.
I don't know if it is the fact that chemo is still
wandering my body, or what. But when that
feeling hits, it is hard to do much of anything.

(Even before I was diagnosed I was often tired,
more tired than anyone should be, even when
stressed. Consider this - especially if you are
having any other symptoms. It might be a reason
to get checked out.)